NOFASD Australia was originally started in 1999 as the National Organisation for Fetal Alcohol Syndrome and Related Disorders (NOFASARD) by Ms Sue Miers AM as a result of her personal experience caring for a child with Partial Fetal Alcohol Syndrome and her struggle to find information and appropriate support services in Australia.
Since 1999, the Organisation has been largely run on a volunteer basis. Sue has worked tirelessly, along with the support of a small dedicated group of volunteers, to have FASD recognised as a disability in Australia, to advocate for the rights and interests of people living with FASD and to provide information and support to individuals and families at a grassroots level. During this time, the Organisation has represented the interests of FASD consumers in a variety of national and international forums.
Sue Miers was awarded the Member of the Order of Australia in 2006 in recognition for her services to the community through the establishment of NOFASARD, to community education and to reconciliation.
In July 2012 NOFASD Australia received a three year grant under the Australian Government Health System Capacity Development Fund. NOFASD Australia is now better resourced to enable the expansion of activities and ensure FASD receives due recognition in both national public policy and in practice at a population-wide level.
In September 2013, NOFASARD changed its name to NOFASD Australia to mark the Organisation’s next phase of development as a newly funded organisation with a new strategic direction. Our change in name also better reflects current internationally accepted terminology in respect to the issue of fetal alcohol exposure by using the term ‘Fetal Alcohol Spectrum Disorders’ in our title.