Sue is the founder and past Chair of the Board of the National Organisation for Fetal Alcohol Spectrum Disorders Australia (NOFASD Australia). NOFASD Australia was founded in 1999 as The National Organisation for Fetal Alcohol Syndrome & Related Disorders (NOFASARD). She has been caring and supporting her now adult foster daughter who has partial fetal alcohol syndrome (pFAS) for the past 34 years. Sue became acutely aware of FASD as she has advocated and supported her daughter through the challenges of FASD across the lifespan.
During her time on the Board of NOFASD Sue lobbied extensively on both a state and national level to raise awareness about Fetal Alcohol Spectrum Disorders (FASD) and was an invited member of, and reported to, various national and state government agencies in Australia, as a recognised parent authority in this area.
In this voluntary role Sue also provided one-on-one support to many parents /carers and individuals living with FASD and also delivered FASD presentations/workshops to foster carers, teachers, drug and alcohol workers, disability workers, mental health workers, midwives and many other community organisations throughout Australia. She has significant expertise and knowledge around the secondary conditions which develop for people affected by FASD.
In June 2006 Sue was awarded the Member of the General Division of the Order of Australia for service to the community through the establishment of the National Organisation for Fetal Alcohol Spectrum Disorder, Community Education and Reconciliation. She has been widely acknowledged as a significant contributor to knowledge and awareness of FASD in Australia. This has encouraged the development of clinical expertise and recognition at a national level that Australia requires a serious commitment to the prevention, diagnosis and development of effective interventions for FASD.
Sue retired from NOFASD Australia in an official capacity in 2015 but continues to provide voluntary support to the organisation in various roles. In addition Sue’s practice based wisdom as the Parent & Family Support Co-ordinator ensures that NOFASD is able to develop staff, support clients and upskill those working to enhance the lives of individuals and families affected by FASD.