Open Doors Navigation System

FASD Support groups

NOFASD Australia

Provides an online and telephone support and advocacy service. Skype Support Groups are now being trialled.  Call 1300 306 238 (local call costs, only from any landline in Australia) or email admin@nofasd.org.au for further information.

 

We are currently calling for Expressions of Interest for a face to face special interest/support group close to Adelaide.  For more information click here

ALICE SPRINGS

FASD Q&A Support Group Alice Springs

https://www.facebook.com/groups/1945614735696079/?ref=group_header

Administrator – Megan

Mobile: 0411536661.


GOLD COAST

Name: QLD FASD Support Group
FaceBook address:  https://www.facebook.com/groups/QldFasd/ 
Administrators:  Sam, Joanne, Claire and Shane 
Status of Group:  closed (public can see membership names but only members can see FB posts)
Telephone:
§         Sam 0401567784
§         Joanne 0420 855 409
§         Claire 0424 354 213
§         Shane 0466 042 777

Here is a list of other local and international organisations that provide a FASD support service as part of the work that they do: 

Fetal Alcohol Network NZ

The people who make up the Fetal Alcohol Network come from within families living with Fetal Alcohol Spectrum Disorders (FASD) and a wide range of professionals involved in the health, education, justice and social services sectors. Click here for further details.

 

FASD-CAN Inc (FASD Care Action Network)

FASD-CAN is a New Zealand non-profit organisation with the primary objective to unite caregivers, strengthen families, support individuals and educate about FASD across the community.  For more information click here

FASD-CAN Professionals & Parents Group (NZ)

https://www.facebook.com/groups/348034555601935/?ref=group_header

This group is designed to bring together those working with individuals living with FASD to share their learnings. Parents are also welcome in this group if they wish to share their "lived experience".

Administrator: Claire Gyde

International FB Parent Support Group - Shifting the paradigm: towards a neuro-behavioral  approach to FASD

This group was started by Adrienne Bashista, co-founder of FAFASD. (Families Affected by Fetal Alcohol Spectrum Disorder) FAFASD on Facebook is at: https://www.facebook.com/fasdfamilies/ The Shifting the Paradigm group is about changing the focus in caring for people who have FASD. Rather than trying to change unwanted behaviour after it happens, behaviour is recognised as a symptom of what is going on in the brain. To "change" behaviour then, it is necessary to step back, observe, and accommodate the person with FASD by making environmental changes that can help prevent unwanted behaviour before it occurs and this in turn lessens emotional distress.

This approach follows the work of Diane Malbin and can be found in her book: FASD Trying Differently Rather than Harder and is recommended reading for support group participants.

Other organisations

The following list is a selection of organisations with useful resources.

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