Latest News

 FASD in the news

Below you will find the latest national and international FASD news, research and upcoming events. If you have some FASD news or upcoming events that you would like us to share with our readers please Contact Us.

If you would like to be emailed our monthly newsletter you are able to signup within the footer of every page within this website, or if you would like to read past newsletters via our newsletter archive page, then click the logo or this link.

 

Read Past Newsletters

2018

The Truth and Reconciliation Commission of Canada’s (TRC)

The Truth and Reconciliation Commission of Canada’s (TRC) Call to Action 34 calls on national, provincial and territorial governments to make changes to the criminal justice system to improve outcomes for offenders with Fetal Alcohol Spectrum Disorder (FASD).

 

6th National Brain Injury Conference

The 6th National Brain Injury Conference will be held on November 13th and 14th, 2018 at the Princess Alexandra Hospital in Brisbane. 
Dr Natasha Reid from the University of Queensland will be presenting a research snapshot on Fetal Alcohol Spectrum Disorder. Read more 

Posted on 16th October

Online Workshop

Telethon Kids Institute would like to invite you to participate in an Online Workshop on improving assessment processes for neurodevelopmental conditions. This workshop will be held on the 19 of October 2018. Participant Information 

Posted on 11th October

Survey of FASD practitioners

Researchers at Griffith University and The University of Queensland are doing a study to explore the impact of fetal alcohol spectrum disorder (FASD) training and professional development on the current practices of Australian and New Zealand health practitioners.

View the flyer here or go directly to the survey.  

 Posted on 4th October 

Online seminar for lawyers  – October 11, 2018

A Canadian expert in the field of Forensic Psychiatry and FASD will explore what lawyers need to know when working with a client who may have FASD. Click here for more information and to register.

Posted on 4th October 

Foster and Kinship Carers training in the Northern Territory 

Following International FASD Awareness day Foster and Kinship Carers NT are excited to announce that NOFASD Australia will be presenting sessions for foster and kinship carers in the NT. Read more and register

Alice Springs: Monday 22nd October

Katherine: Wednesday 24th October

Darwin: Thursday 25th October 

Posted on 2nd October

HESTA Community Sector Awards

NOFASD Australia are excited to announce that their founder Sue Miers is a finalist in the 2018 HESTA Community Sector Awards!

Sue is one of two finalists in the Unsung Hero category and has been recognised for her voluntary work supporting families struggling to manage and understand Fetal Alcohol Spectrum Disorder and for her tireless efforts in increasing awareness and prevention of the disability.

The winners of each category will be announced at a special awards dinner in Sydney on October 29th.

Posted on 25th September

‘FASD and Me’

FASD Hub Australia launched a creative artworks competition entitled ‘FASD and Me’ . The competition is open to people of all ages – kids, teenagers, adults living with FASD and their siblings, parents and caregivers. Entries can be drawings, paintings, cartoons, videos, poetry – anyway you want to tell a story.

Information and the Entry Form can be found on the FASD Hub.

Alcohol consumption lowest in half a century

Apparent consumption of alcohol per person has dropped to levels not seen since the 1960s, according to data released by the Australian Bureau of Statistics.

Family Survey Participant Info Sheet

Family Survey Participant Info Sheet – We invite you to be a part of a research project that looks at the experiences of families like yours, who are caring for a child or adolescent with Fetal Alcohol Spectrum Disorder (FASD). Your participation is important because we have limited information about the impact of FASD on children and their families in Australia

FASD – A Sunshine Coast Conversation

A free one-day community forum exploring the impacts of and responses to Fetal Alcohol Spectrum Disorders (FASD). Experts in the FASD field will present about the impacts of living with FASD and the latest local and national development in prevention, diagnosis and supports. Participants will contribute ideas for
community action to raise awareness and reduce the hardship associated with FASD on the Sunshine Coast.
This forum invites people who are:
• living with FASD
• interested in health and wellbeing
• working in education or childcare
• health professionals or community support workers
• involved in health or social research

The Community Forum will be held on 3 September in Bokarina from 8am to 2.30. Follow this link for more information about the forum and the scheduled presenters. Register for this free event here.

Posted on 22nd August 2018

Barriers to accessing education in the NT

Fetal Alcohol Spectrum Disorder is a particularly challenging issue in education. FASD is not easily identified and often goes undiagnosed. Behaviours associated with the disorder, such as learning and behavioural difficulties, can often be associated with and attributed to other disorders.
Click here to read full article

Posted on 14th August 2018

Upcoming events

The Sunshine Coast are having a Fetal Alcohol Spectrum Disorder Community Forum on 3 September in Bokarina

Gold Coast Health are having a FASD International Awareness Day on the 6 of September at the Southport Health Precinct

FASD awareness day Lady Cilento 2018 is holding a Fetal Alcohol Spectrum Disorder Lunch and Seminar on 7 of September at Lady Cilento Children’s Hospital

FASD information session is being held on the September 10 at FamilyCare Shepparton for parents, carers and service providers.

Train it Forward FASD Masterclass is being held on the September 11 at FamilyCare Shepparton for parents, carers and service providers.

Train it Forward FASD Masterclass  is being held on the September 12 at the Wallen Family & Children’s Centre Wallen for parents, carers and service providers.

Posted on 9th August 2018

 

Invitation to attend NDIS focus group in NSW on Thursday 26th July

Carers and health professionals are invited to participate in a focus group on July 26 at 1:30 pm in Woolloomooloo which will seek feedback on the impact of the implementation of the NDIS on mental health carers and services. Mental Health Carers NSW is currently writing a submission for the parliamentary inquiry into the implementation of the NDIS and the provision of disability services in NSW.

The focus group will explore;

  • The impact of the implementation of the NDIS and of privatising government run disability services on mental health carers in NSW
  • The impact of the implementation of the NDIS on services which provide support to mental health carers and consumers including workforce issues and challenges involved in delivering services
  • The adequacy of current regulations and oversight mechanisms and potential opportunities to improve them

The afternoon will start with a joint discussion with both carers and professionals. Following this carers and professionals will split into separate groups in order to ensure that all have an opportunity to talk about the issues that are most pertinent to their situation.

Please contact peta.smit-colbran@mentalhealthcarersnsw.org for further information or to RSVP to attend.

Posted on 20 July 2018

Donna Ah Chee announced as keynote speaker at Rural Medicine Australia Conference

Donna Ah Chee, a highly respected advocate in the Aboriginal health sector, will be a keynote speaker at this year’s Rural Medicine Australia 2018 (RMA18) conference. The conference will be held at the Darwin Convention Centre from  25 – 27 October 2018, with a pre-conference clinical workshop and meeting day on Wednesday 24 October. RMA18 is the premier annual event for rural and remote doctors. Donna is a Bundgalung woman from the far north coast of New South Wales, and has lived in Alice Springs for 30 years, where she is a leader in the delivery of Aboriginal health services. RDAA President, Dr Adam Coltzau, said: “We are very excited to have Donna — who is such an influential member of the Aboriginal health community — speaking at RMA18. Read more here.

Posted on 17 July 2018

Alcohol and pregnancy – Why doesn’t it worry us?

Drink Tank recently published an article by NOFASD Australia’s Louise Gray, titled Alcohol and pregnancy – Why doesn’t it worry us? This was written in response to the upcoming government decision on alcohol and pregnancy labelling laws. Australian alcohol companies are not currently required to include pregnancy warning labels on their products, and the Foundation for Alcohol Research and Education (FARE) has commenced campaigning for a new mandatory labelling system to complement its FRSC submission. Read the article here.

Posted on 13 July 2018

FARE petition to end alcohol advertising in the NRL

The Foundation for Alcohol Research and Education (FARE) have started a petition calling on the Australian Rugby League Commission to end alcohol advertising in the NRL. Millions of Australian children and families watch the NRL, a sport that is saturated with advertising. Evidence shows that exposure to alcohol advertising is associated with young people drinking more and from an earlier age. In addition to alcohol contributing to the three leading causes of death among young people in Australia, alcohol also contributes to unplanned pregnancy.  Fetal exposure to alcohol causes FASD – the leading known non-genetic cause of developmental disability in children. You can sign the petition here.

Posted on 6 July 2018

SA FASD Special Interest/Support Group Meeting – we would love to see you there!

South Australia, Friday 10th August 2018

Facilitator: Sue Miers (NOFASD founder)

The purpose of this informal group is to provide everyone with the opportunity to share your story if you feel comfortable doing so and find understanding and support through group discussion and access to helpful resources.

A light lunch will be provided so for catering purposes could you please let us no know by Friday 3rd August, if you will be attending. You can contact us here or free call 1800 860 613

When: Friday August 10
Time: 11.00 – 1.00
Junction Community Centre
2A May Terrace,
OTTWAY SA 5013
(cnr May Tce & Junction Rd)

Posted on 3 July 2018

Demystifying FASD in Youth Conference

New South Wales, Monday 13th August 2018

After the success of the last FASD Training Day, the CICADA Centre NSW will host “Demystifying FASD in Youth” to empower GPs, paediatricians, psychiatrists, allied and mental health professionals to develop knowledge and skills in FASD in children and adolescents. The registration form is available here.

Posted on 25 June 2018

Unravelling the myths of Fetal Alcohol Spectrum Disorder

Western Australia, 6.30pm Thursday 19th July 2018

Join clinical neuropsychologist Associate Professor Carmela Pestell as she sheds light on the hidden epidemic of FASD, why an accurate diagnosis of this complex condition is vital and how sufferers – both children and adults – can be helped to have a better future.
Date: Thursday 19th July 2018
Time: 6.30pm – 7.30pm (doors open at 6.00pm)
Venue: The Auditorium at The University Club of Western Australia
Address: Hackett Entrance #1, Hackett Drive, Crawley WA 6009

For more information and to register click here

Posted on 14 June 2018

8th International Conference on Fetal Alcohol Spectrum Disorder

Vancouver, March 6-9, 2019

Research, Results and Relevance: Integrating Research, Policy and Promising Practice Around the World

This advanced level conference/meeting continues to bring together global experts from multiple disciplines to share international research. From the pure science, to prevention, diagnosis and intervention across the lifespan, the conference will address the implications of this research and promote scientific/community collaboration.

Click here for more information

Posted on 12 June 2018

Are you the carer of a child with FASD?

Are you the carer of a child with FASD?  If so, researchers at the University of Queensland Child Health Research Centre are doing a study to assess health and well-being of children with fetal alcohol spectrum disorder (FASD). They are looking to gather information from Australian caregivers who have children with FASD (aged 5-18 years).

The study hopes to fill in the gaps and learn more about how Australian children have been impacted by prenatal alcohol exposure and the stressors that caregivers and families are facing.  Ultimately this will help to develop interventions to improve the health and well-being of individuals with FASD and their families.

Click here for more information

Posted on 5 June 2018

The 2nd Australasian FASD Conference

The 2nd Australasian FASD Conference will be held in Perth on 21-22 November 2018.

It is important that families living with FASD know this conference is designed to benefit those with FASD, those with lived experienced, family support services, clinical professionals and researchers.

If you are interested in FASD – there is something for you at this conference!

Traditional conference abstract lodgement has been called for, however there is also scope to submit ideas and information in non-traditional ways. This could take the form of photos, videos, stories, posters and other ideas.

For example, you may care for a child with a talent for photography and a gallery of photos could provide insight and illumination into the world of that child. Such displays gives others a unique perspective and understanding. You may have designed, or come across, strategies, posters, charts, or tips which may be useful for others.

This is the forum to share these ideas and many others, click here to submit fasdconference.com/abstract-submission/.

If you need help, or have any questions about submissions please contact FASD2018@telethonkids.org.au

Closing date for submissions is the 11th of May 2018.

Posted on 14 April 2018

New FASD Clinic

The Gold Coast Clinic is opening a new clinic for young children aimed at diagnosing children from 3-7 years of age. They are operating this with their usual team and also help from Griffith University.  The referral criteria are the same – a history of prenatal alcohol exposure plus developmental or behavioural concerns. Referrals can go through Tanya on CDSGoldCoast@health.qld.gov.au or by phone on 56879183.

Posted on 9 March 2018

Support navigating the NDIS?

We’ve put together some information on accessing the NDIS. Read it here.

Posted on 16 March 2018

Survey – the way the law responds to people who behave in different ways

Professor Karpin and Dr O’Connell are both academics at the Faculty of Law, University of Technology, Sydney (UTS). They are researching the way that the law responds to people who behave in ways that are viewed by some members of society as challenging, different or difficult. We are talking to a range of people and are particularly interested in hearing about the lived experiences and thoughts of people with disability and their associates. As part of our research we have prepared two online surveys; one for people with disability and one for their associates. Both surveys are approximately 30 minutes long and are focused on how the law affects people one a day to day basis. You can find copies of the surveys (including the Participant Information Sheet and Consent Form) by clinking on the following links: https://www.surveymonkey.com/r/bioinequalities1 and https://www.surveymonkey.com/r/bioinequalities2. This research will allow us to consider whether the laws we have are working or whether they need to be changed. We will look at laws that have the effect of protecting or excluding people with disabilities and make suggestions about how they could be improved. Please don’t hesitate to contact us if you would like more information. Professor Karpin can be contacted on 02 9514 3179 or at Isabel.Karpin@uts.edu.au, and Dr O’Connell can be contacted on 02 9514 8079 or at Karen.OConnell@uts.edu.au

Posted on 8 March 2018

Adult and child diagnosis of FASD

Better Life Centre provides services to assist in the diagnosis and support of people with Fetal Alcohol Spectrum Disorders (FASD). Using a team which may consist of a Paediatrician, Clinical, Educational and Developmental psychologists and Neuropsychologists our allied health professionals help to make the diagnosis process as simple as possible. Adherence to Australian Guidelines, our team upholds national standards in health care. The practitioners help with both child and adult diagnosis, while providing the framework for future support.

Better Life Centre

P: 07 3353 5430 | F: 07 3839 0966 | W: www.betterlifecentre.com.au | E: admin@betterlife.com.au

Posted on 2 March 2018

Prevalence of FASD in youth detention

Here is the link to the published paper on prevalence of FASD in youth detention

http://bmjopen.bmj.com/content/bmjopen/8/2/e019605.full.pdf?ct

Posted on 14 February 2018

28 FASD Facts for Health Professionals

  1. Alcohol is a teratogen that readily crosses the placenta and damages the central nervous system and other organs and may impair prenatal and postnatal growth (Fitzpatrick & Pestell, 2016)
  2. When a mother consumes alcohol during pregnancy, the blood alcohol of the fetus is the same or higher than the mothers (Bower & Elliott, 2016)
  3. In the absence of facial dysmorphology, FASD is commonly underdiagnosed and mis-diagnosed as Autism Spectrum Disorder, Attention Deficit Hyperactivity Disorder and Conduct Disorder (Stevens, S., Nash, Koren, & Rove, 2013).
  4. Only 41% of allied health and medical professionals are confident in asking about alcohol use during pregnancy which contributes to the under-diagnosis of FASD (Payne, Elliott, Bower et al., 2005).
  5. FASD is recognised as the leading preventable cause of birth defects and developmental and learning disability worldwide (Mather, Wiles & O’Brien, 2015).
  6. 92% of individuals living with FASD will have a co-occurring mental illness, with depression and suicidal ideation being the most common (Thanh & Jonsson, 2016)
  7. 50% of Australian women will experience an unplanned pregnancy, leaving the chance of alcohol exposed pregnancies very high (Australian Medical Association, 2016)
  8. The ‘spectrum’ of birth defects is due to the quantity of alcohol consumed, how frequently it was consumed and the timing during the gestation of the pregnancy it was consumed (May & Gossage, 2011).
  9. Rates of alcohol use, binge drinking and drinking during pregnancy are increasing in young Australian women (Elliott, Payne, Morris, Haan & Bower, 2008).
  10. The National Health and Medical Research Council and World Health Organisation advise to abstain from drinking alcohol during pregnancy and breastfeeding (NHRMC, 2009; World Health Organization, 2014)
  11. The 3 sentinel facial features for FASD (thin upper lip, smooth philtrum, short palpebral fissure length) are specific to alcohol exposure and do not vary by race, age or gender (Moore et al., 2007).
  12. Women have articulated that peer pressure & not wanting others to know they are pregnant, insufficient education and the enjoyment of alcohol as reasons they felt giving up alcohol during pregnancy would be hard (Tsang & Elliott, 2017).
  13. Life expectancy at birth for people with FAS is 34 years old with the leading cause of death being suicide (Thank & Jonsson, 2016).
  14. 83% of individuals living with FASD do not display facial features (Aros., et al, 2012)
  15. 1/3 women are unaware of the dangerous effects alcohol has on a developing fetus (Paedon, Payne, Bower, Elliott et al., 2008)
  16. Problems that emerge in childhood do not disappear with age, but rather form the development of additional and possibly more severe disorders later in life (Pei, Denys, Hughs & Rasmussen, 2011)
  17. The risk of developing early onset (13-17 years) alcohol abuse disorder was two times higher in those exposed to 3 or more standard drinks in early pregnancy (Alati et al., 2006)
  18. Facial dysmorphology only occurs when alcohol is consumed during the first trimester (Feldman et al., 2012)
  19. 81% of individuals living with FASD will have a language disorder (Popova et al., 2016)
  20. Children living with FASD are three times more likely to experience gross motor impairment than those without FASD. The most common gross motor deficits children experience is balance, coordination and ball skills (Lucas et al., 2014)
  21. FASD occurs in all cross-sections of society, wherever there is alcohol there is FASD (Fitzpatrick & Pestell, 2016).
  22. High socio-economic status is a strong predictor for alcohol use (McCormack, Hutchinson, Burns, Wilson, Elliott, Allsop, Najman, Jacobs, Rossen, Olsson & Mattick, 2017).
  23. There is no threshold for prenatal alcohol exposure required for diagnosis of FASD (Bower & Elliott, 2016)
  24. 1 in 4 pregnant women continue drinking during pregnancy, & of these, 96% report drinking 1 or 2 standard drinks (defined as 10g of ethanol) in a typical drinking session (2013 National Drug Strategy Household Survey, 2014)
  25. 61% of pregnant women drank between conception and pregnancy recognition. Binge and heavy drinking the most common (McCormack, Hutchinson, Burns, Wilson, Elliott, Allsop, Najman, Jacobs, Rossen, Olsson & Mattick, 2017)
  26. Global prevalence is conservatively estimated at 7.7 per 1000 population (95% CI, 4.9-11.7 per 1000 population) and is much higher in populations with risky levels of drinking (Lange, Probst, Gmel, Rehm, Burd & Popova, 2017).
  27. Without intervention individuals living with FASD risk developing secondary issues such as school failure, addictions, mental health disorders, dependent living, unemployment, homelessness & incarceration (Popova et al., 2016).
  28. 1/3 women binge drank during their pregnancy on a ‘special occasion’ (Muggli et al., 2016)

Posted on 1 February 2018

Invitation to a FASD Eyebites Cards Webinar

NOFASD Australia and the Ministry of Vulnerable Children Oranga Tamariki of New Zealand invite you to a FASD Eyebites Cards Webinar.

This informal conversational webinar with Rose Hawkins and Anne Heath will showcase the FASD Eyebites Cards, a fantastic resource for practitioner, parents or carers working with those who have lived experience of FASD. These unique cards can assist as an everyday tool to support families and service providers in key FASD-informed principles. They are also useful in times of challenge.

After the Webinar the FASD Eyebites cards can be obtained in the following ways:

  • In New Zealand – via email request for Rose.Hawkins@mvcot.govt.nz A small charge may apply.
  • In Australia – via email request to NOFASD’s online enquires form at www.nofasdaustralia.com/contact-us Only postage and handling fees will be charged.

About the presenters:

Rose Hawkins is the regional disability advisor for the northernmost region of the New Zealand child protection and youth justice organisation, Ministry of Vulnerable Children Oranga Tamariki. Rose realised that much of her work is about support for children, young people and families grappling with the lifelong effects of Fetal Alcohol Spectrum Disorder (FASD). To address this and raise awareness Rose has collaborated with Alcohol Healthwatch and the FASD Centre Aotearoa and developed FASD resources which are “easily digestible” including the FASD Eyebite Cards. Rose’s health and disability career started in physiotherapy, working in diverse clinical areas and management positions across the sector.

Dr Anne Heath has a background in community services (alcohol and drug, youth work, disability, mental health, homelessness). Anne recognised that hidden FASD often underpins many challenges across the community sector and has since contributed to awareness raising and community education across Australia. Anne currently works as the national educator at NOFASD Australia and as a Lecturer at the University of Tasmania.

Date: 31st January 2018

Times:

New Zealand – (NZDT) 4pm

Western Australia – (AWST) 11am

South Australia – (ACDT) 1.30pm

Northern Territory – (ACST) 12.30pm

Queensland – (AEST) 1pm

NSW, Victoria, Tasmania, ACT – (AEDT) 2pm

Charge: No charge to attend webinar.

Registration: https://login.redbackconferencing.com.au/landers/page/272dc2

Posted on 3 January 2018

 

 

 

2017

08-Dec-2017 – Christmas message

Pregnant, planning or could be – no alcohol is the safest choice at Christmas. See this timely reminder from children about what is really important at Christmas.

Click here

05-Dec-2017 – Christmas message

Pregnant, planning or could be – no alcohol is the safest choice at Christmas. See this timely reminder from children about what is really important at Christmas.

Click here

14-Nov-2017 – Make FASD History in Newcastle

M A K E F A S D H I S T O R Y I N N E W C A S T L E

This FASD (Fetal Alcohol Spectrum Disorder) Forum will bring together specialists to share their knowledge and experience of FASD in the Hunter region. It will also be a professional development and awareness raising opportunity for health professionals, educators, service providers, government agencies and community members who are actively encouraged to attend.

Guest speakers include:

PROF ELIZABETH ELLIOTT

Sydney Children’s Hospitals Network (Westmead)

PROF JOHN BOULTON

Emeritus Professor, Faculty of Health and Medicine, Newcastle University

DR JAMES FITZPATRICK

Project lead – Head Alcohol and Pregnancy and FASD Research

Telethon Kids Institute Perth

MAGISTRATE ELLEN SKINNER

Broadmeadow Children’s Court

Newcastle City Hall Banquet Room

5 December 2017

6:00 – 8:00pm

Bookings: events@mercyservices.org.au

RSVP by 24 November

Contact: Project Officer Kerrie Hawkins 0447 048560

Admission free

Light supper provided

There will be an opportunity for

questions and public discussion

06-Nov-2017 – Advocacy support to people with disability

DDWA is increasingly being asked to provide advocacy support to people with disability in the area of education and in particular for people experiencing challenging behaviour.

We are interested to hear about you or your family member’s experience at school.

The survey is for families with a child aged 5-18 with challenging behaviour and difficulties in the school system. If you have more than one child with challenging behaviours, please complete a survey for each child.

The information you provide will assist with:

– getting data on the number of students being fully or partially excluded from school because of their behaviour

– the impact of this exclusion on families

– our systemic advocacy work in promoting changes that enable all children to participate in school, both socially and academically

– our project work in developing workshops and resources for schools to help them to understand and respond to students with very complex needs

This survey should take around 10 minutes – a $50 Coles Myer voucher will be sent to a randomly selected respondent.

All responses will be treated with confidentiality and we do not share any personal details with third parties. All responses will be de-identified before any findings are reported on.

https://www.surveymonkey.com/r/YG8PP9W

Thank you for participating.

Best wishes from the team at DDWA

31-Oct-2017 – Alcohol labelling

On 24 November 2017 Australian and New Zealand Ministers with responsibility for food regulation, known as the Forum on Food Regulation (the forum), will be considering alcohol pregnancy warning labels. We seek your support by writing to the Health and Food Ministers in your state or territory to ask them to immediately commence the process of mandating proper pregnancy warning labels on all alcohol products.

There is a real prospect that Forum members are prepared to end the alcohol industry’s failed and grossly inadequate voluntary consumer information scheme.

We need your help to make this a reality.

Please send the sample letter below and send to your Ministers. (For those in Qld and in view of the just announced State Election and the caretaker status of the Government, we are recommending you write to the Commonwealth Minister, Dr David Gillespie.)

Why this issue is important

  • In 2011, Ministers agreed that alcohol warning labels should be pursued, but allowed the alcohol industry a two year trial period “…to introduce appropriate labelling.”[i] This timeframe was extended in 2014 for another two years.
  • Recent testing (2016) found that the DrinkWise label (‘It is safest not to drink while pregnant’) was misinterpreted by consumers with 38 per cent of those surveyed believing it meant that it was okay to consume alcohol during pregnancy.
  • Alcohol health warning labels promote health messages in ways that other health initiatives do not, at point of sale and at point of consumption.
  • There is a clear regulatory process for food labelling (alcohol is considered a food in this instance) in Australia and New Zealand, this is through Food Standards Australia New Zealand (FSANZ).
  • A labelling standard has not yet been produced, one details the size, location and wording of the label. FSANZ is the only organisation that can do this and needs to be tasked by the Forum to commence the process to implement mandatory alcohol health warning labels.
  • Continued delay and the continued allowance of labels that confuse or are misinterpreted by consumers is dangerous to the health and lives of future generations.

Thank you

TEXT HIGHLIGHTED IN YELLOW ARE PROVIDED AS A GUIDE. PLEASE DELETE BEFORE SUBMITTING.

DATE

The Hon Name Surname[SW1]

Position

Address

SUBURB STATE Postcode

Dear[SW2] Salutation

MANDATORY ALCOHOL PREGNANCY WARNING LABELS

I/we am/are writing about the meeting taking place on 24 November 2017 between Australian and New Zealand Ministers with responsibility for food regulation, known as the Forum on Food Regulation (Forum). I/we ask Forum members to immediately commence the process of mandating proper pregnancy warning labels on all alcohol products.

In 2011 the Forum agreed that alcohol warning labels should be pursued, but allowed the alcohol industry a two year trial period “…to introduce appropriate labelling.”[i] This timeframe was extended in 2014 for another two years.

The alcohol industry’s voluntary trial has clearly failed. Testing of the DrinkWise label (‘It is safest not to drink while pregnant’) in 2016 found that the label was misinterpreted by consumers with 38 per cent of those surveyed believing it meant that it was okay to consume alcohol during pregnancy.[1This is highly dangerous; alcohol is not like other products, it is associated with considerable harm, particularly when consumed during pregnancy. Consumers have a right to be informed about these dangers.

It is time the Ministerial Forum tasked Food Standards Australia and New Zealand to immediately develop a regulatory standard for alcohol product labelling. This includes the standard of wording, consumer testing and application of labels including the size, colour and placement on products.

Further delays will result in more babies being born who have been exposed to alcohol in-utero, many of whom will have Fetal Alcohol Spectrum Disorder (FASD).

INCLUDE INFORMATION HERE ABOUT:

  • YOUR EXPERIENCE/KNOWLEDGE OF FASD
  • HOW YOU BELIEVE CONSUMERS HAVE A RIGHT TO BE INFORMED

OR DELETE THE SECTION HIGHLIGHTED IN YELLOW IF YOU WOULD LIKE IT TO BE A GENERIC SUPPORT LETTER.

ANYTHING ELSE YOU WANT TO ADD

 

Forum on Food Regulation Ministers

WWhen writing to your Minister/s please copy and paste the entire address block and use the salutation provided.

Commonwealth

The Hon Dr David Gillespie MP david.gillespie.mp@aph.gov.au

Assistant Minister for Health

PO Box 6100 Parliament House

CANBERRA ACT 2600

Salutation: Dear Dr Gillespie

The Hon Luke Hartsuyker MP luke.hartsuyker.mp@aph.gov.au

Assistant Minister to the Deputy Prime Minister

PO Box 6100 Parliament House

CANBERRA ACT 2600

Salutation: Dear Mr Hartsuyker

ACT

Ms Meegan Fitzharris MLA

Minister for Health fitzharris@act.gov.au

GPO Box 1020

CANBERRA ACT 2601

Salutation: Ms Fitzharris

NSW

The Hon Niall Blair MLC niall.blair@parliament.nsw.gov.au

Minister for Primary Industries

Level 30
Governor Macquarie Tower
1 Farrer Place

SYDNEY NSW 2000

Salutation: Dear Mr Blair

The Hon Brad Hazzard MP wakehurst@parliament.nsw.gov.au
Minister for Health

Level 31
Governor Macquarie Tower
1 Farrer Place

SYDNEY NSW 2000

Salutation: Dear Mr Hazzard

NT

The Hon Natasha Fyles MLA Minister.fyles@nt.gov.au

Minister for Health

GPO Box 3146

DARWIN NT 0801

Salutation: Dear Ms Fyles

QLD

(Due to the QLD election please send letter to david.gillespie.mp@aph.gov.au

David Gillespie Commonwealth Minister instead)

The Hon Dr David Gillespie MP

Assistant Minister for Health

PO Box 6100 Parliament House

CANBERRA ACT 2600

Salutation: Dear Dr Gillespie

SA

The Hon Peter Malinauskas MLC Minister.Health@health.sa.gov.au

Minister for Health

GPO Box 2555

ADELAIDE SA 5001

Salutation: Dear Mr Malinauskas

The Hon Leon Bignell MP ministerleonbignell@sa.gov.au

Minister for Agriculture, Food and Fisheries

GPO Box 1671

ADELAIDE SA 5001

Salutation: Dear Mr Bignell

TAS

The Hon Michael Ferguson MP michael.ferguson@parliament.tas.gov.au

Minister for Health

PO Box 537

LAUNCESTON TAS 7250

Salutation: Dear Mr Ferguson

Vic

The Hon Jill Hennessy MP minister.health@health.vic.gov.au

Minister for Health

Level 22
50 Lonsdale Street

MELBOURNE VIC 3000

Salutation: Dear Ms Hennessy

The Hon Jaala Pulford MLC jaala.pulford@parliament.vic.gov.au

Minister for Agriculture

Level 16
8 Nicholson Street

EAST MEBOURNE VIC 3002

Salutation: Dear Ms Pulford

WA

The Hon Roger Cook MLA Minister.Cook@dpc.wa.gov.au

Minister for Health

13th Floor
Dumas House

2 Havelock Street

WEST PERTH WA 6005

Salutation: Dear Mr Cook

24-Oct-2017 – Calm room

Jessica Hannan, from NOFASD was the OT clinical consultant at the launch of the Calm Room at Westfield Woden (ACT). Designed to be a safe place for individuals living with sensory processing difficulties to go to when they are shopping. Many families reporting that the overloading sensory environment of a shopping centre can impact on parents, carers and families ability to complete this activity of daily living. Westfield Woden decided to give them some independence back. It is designed to be used for individuals of all ages who find the shopping environment difficult to manage. Sensory processing difficulties don’t just occur with Autism Spectrum Disorder but are also a co-morbidity of many other disorders such as ADHD, FASD, trauma, anxiety and PTSD.

Calm%20Room

02-Oct-2017 – Navigating the NDIS

Navigating the NDIS: a NSW Mental Health Perspective Workshops

Are you a service provider, a person living with a mental health condition, or their family or carer with questions about the NDIS? Are you unsure about how it will affect people accessing mental health services?

With the NDIS being rolled-out state-wide, now is a great time to learn more about how it may affect you. This course will help you maximise the potential of the Scheme to support people to live the life they want.

More information click here

25-Sep-2017 – getting the best” out of the NDIS

Brain Injury Australia thought you might be interested in two workshops on “getting the best” out of the NDIS that we are offering in November.

The first workshop – developed for clinicians, allied health professionals and service providers – will deliver: the key information on the NDIS frameworks, preparation and planning processes; practical tools that can be used in pre-planning and planning work; the necessary elements of effective clinical goal-setting, assessment, planning and evidence-based interventions to support NDIS participants with a brain injury and promote their social role participation; and the skills to navigate the crucial interface between State/ Territory health-funded services and the NDIS.

The second workshop – designed for people with a brain injury, their families, carers and advocates – will provide attendees with: the essential information on the NDIS’ rules and guidelines, and how you can use them in your preparation and planning for the NDIS; the experiences of current NDIS participants with a brain injury; and guidance to commence documenting your current life circumstances and disability services as well as planning for potential NDIS-funded supports to meet goals.

Both workshops will be led by an interdisciplinary team of Professor Barry Willer from the State University of New York at Buffalo, occupational therapist Libby Callaway, Associate Professor Natasha Lannin from La Trobe University, and Sue Sloan – an occupational therapist and clinical neuropsychologist.

The first workshop will be held on Monday November 21st, the second workshop on Tuesday November 22nd, both at Royal Rehab in Ryde, Sydney.

Both workshops’ numbers are strictly limited, so register early.

Click here

20-Sep-2017 – FASD Parent/Carer face to face special interest/support group in South Australia

FASD Parent/Carer face to face special interest/support group in South Australia – Calling for expressions of interest

If you (or anyone you know) would be interested in attending a FASD face-to-face special interest/support group close to Adelaide we would love to hear from you. The group meetings (perhaps bi-monthly or quarterly) will be facilitated by NOFASD founder Sue Miers and we envisage the location being somewhere reasonably central but where car parking is not an issue. Two hour meetings are planned to be held on a weekday sometime between 10.30- 1-30 (light lunch supplied)

Please use our online enquiries form to register your interest and let us know which days of the week and times would work best for you and whether you are likely to have children with you (at this stage child care will not be available).

The closing date for this expression of interest is Friday October 6th We look forward to hearing from you and should you have any queries please don’t hesitate to contact our help-line1300 306 238 (free call)

20-Sep-2017Workshop on the National Disability Insurance Scheme (NDIS)

Brain Injury Australia presents a day-long workshop on the National Disability Insurance Scheme (NDIS) for professionals working with people with a brain injury. The NDIS, which will provide around 460,000 people with disability the “reasonable and necessary supports they need to live an ordinary life” by 2019, radically changes the way people with a brain injury plan for, and receive, services. Delivered by an interdisciplinary team experienced in both the policy and clinical practice application of the NDIS, this workshop will provide registrants with:

  • – the key information on the NDIS frameworks, preparation and planning processes;
  • – practical tools that can be used in pre-planning and planning work;
  • – the necessary elements of effective clinical goal-setting, assessment, planning and evidence-based interventions to support NDIS participants with – a brain injury and promote their social role participation; and
  • – the skills to navigate the crucial interface between State/ Territory health-funded services and the NDIS

MONDAY 20THNOVEMBER 2017 ROYAL REHAB

9:30 am – 4:30 pm 235 Morrison Road, Ryde Sydney

Presenters

BARRY WILLER is Professor of Psychiatry at the State University of New York at Buffalo. He has worked in the field of traumatic brain injury for over 30 years, written three books and 150 peer-reviewed journal articles and book chapters. He is the principle author of the Community Integration Questionnaire and the “Whatever it Takes” model. He was the first director of the Rehabilitation Research and Training Center on Community Integration and was a leader in the development of the Traumatic Brain Injury Model Systems database. He was the 2012 recipient of the Research Award from the North American Brain Injury Society.

LIBBY CALLAWAY Libby Callaway is a registered occupational therapist, having worked for the past 24 years in the field of neurological rehabilitation in both Australia and the United States. Since 1999, Libby has been the director and principal occupational therapist at Neuroskills, a community-based practice providing rehabilitation services to people with neurological disability. Libby has also consulted to the National Disability Insurance Agency during development of their Specialist Disability Accommodation Framework, and worked with current and future National Disability Insurance Scheme (NDIS) participants on pre-planning and NDIS plan implementation. In addition to this clinical work, Libby is a senior lecturer and researcher in the Occupational Therapy department at Monash University, where she leads a national collaborative research program on housing, technology and support design for people with disability.

NATASHA LANNIN is Associate Professor in Occupational Therapy at Alfred Health in Melbourne and La Trobe University, and is Honorary Research Fellow at the John Walsh Institute for Rehabilitation Research, the George Institute for Global Health and the Florey Institute of Neuroscience and Mental Health. Working with the Alfred Health hospital network, she conducts clinical trials investigating the effectiveness of rehabilitation interventions as well as translation research into improving the long-term outcomes for those living with a traumatic brain injury or stroke. She has a keen interest in goal-setting and improving support for people with brain injury and their carers transitioning from hospital to the community

SUE SLOAN is a registered occupational therapist and clinical neuropsychologist. Sue works in private practice providing community-based rehabilitation for people with acquired brain injury. Sue is also Honorary Neuropsychologist in the Austin Health’s Brain Disorders Program providing rehabilitation to people with brain injury and complex mental health co-morbidities. Sue has co-authored three books in the field, published in peer-reviewed journals and frequently presents on aspects of community-based brain injury rehabilitation.

REGISTRATION FORM/ TAX INVOICE

(For GST purposes, this document will act as a tax invoice upon receipt of payment)

THE WORKSHOP’S NUMBERS ARE STRICTLY LIMITED, SO REGISTER EARLY

GETTING THE BEST FROM THE NDIS – WORKSHOP FOR CLINICIANS, ALLIED HEALTH, SERVICE PROVIDERS

Community Centre, Royal Rehab, 235 Morrison Rd, Ryde (entry via Charles Street – see map, below)

Monday 20th November 2017, 9:30 a.m. – 4:30 p.m.

WORKSHOP COST: $180.00 (GST inclusive)

Lunch, morning and afternoon tea will be provided.

(All proceeds from the workshop will support the work of Brain Injury Australia.)

Name: ___________________________________________________________________________________________________

Organisation (if applicable): __________________________________________________________________________________

Position/ occupation: ______________________________________________________________________________________

Postal address: ____________________________________________________________________________________________

E-mail: _______________________________________________ Best contact telephone: _______________________________

Disability access requirements: _______________________________________________________________________________

Special dietary requirements: ________________________________________________________________________________

PAYMENT DETAILS:

(Payment by Electronic Funds Transfer (EFT) is preferred.)

ELECTRONIC FUNDS TRANSFER:

(Note: please enter the initial of your first name and your surname as the payment reference. However, if it is a business/ organisational registration for multiple attendees please enter the name of the business/ organisation as your payment reference.)

BSB: 032 267 Account number: 302 928

Account name: Brain Injury Australia

ABN: 77314074922

BRAIN INJURY AUSTRALIA

is the national peak advocacy organization, the central clearinghouse of information and gateway to nationwide referral for optimising the social and economic participation of the over 700,000 Australians with an acquired brain injury (ABI), their families and carers.

CREDIT CARD PAYMENT:

Provide card details below.

Visa MasterCard

Credit Card No ____ ____ ____ ____ ____ ____ ____ ____

____ ____ ____ ____ ____ ____ ____ ____

Expiry: ____ ____ / ____ ____ CVC: ____ ____ ____

Cardholder Name: _______________________________

Cardholder Signature: ____________________________

PLEASE FORWARD THE COMPLETED REGISTRATION FORM

E-MAIL: admin@braininjuryaustralia.org.au

MAIL: Brain Injury Australia, PO Box 220, Marrickville, NSW 1475

If you/ your organisation requires a tax invoice to be supplied prior to payment please email your request to; admin@braininjuryaustralia.org.au

13-Sep-2017 – Alcohol & pregnancy – Have your say!

Fetal Alcohol Spectrum Disorder (FASD) is a lifelong disability caused when babies are exposed to alcohol in the womb. Researchers at Telethon Kids are part of a nation-wide team working to better understand and prevent it.

We need your thoughts on alcohol consumption during pregnancy, and the diagnosis, treatment and support for those affected by FASD.

Just by completing a short survey, you’ll help set priorities for future research. Survey closes on the 19th of September.

To get started visit: Click here

08-Sep-2017 – Press release

The National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD, Australia)

NOFASD Australia is dedicated to reducing the harm caused by alcohol exposed pregnancies and improving lives for those living with FASD.

ARE AUSSIE MALES MAN ENOUGH TO HANDLE PREGNANCY?

On International FASD Awareness Day, Saturday 9 September, the National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) Australia is challenging all Aussie men and those supporting a mum-to-be to show their manliness: by going belly-up on alcohol to get #pregnanttogether with the expectant mothers in their lives.

Fetal Alcohol Spectrum Disorder (FASD), the result of exposure to alcohol in utero, is the leading known cause of developmental disability believed to affect one percent of the population. To symbolise the nine months of pregnancy, FASD International Awareness Day on 9 September raises awareness of the importance of being completely alcohol free throughout the pregnancy, including if planning to be.

“Alcohol in pregnancy is a community concern, not just a woman’s issue. Everyone can play a part in eradicating FASD and this FASD Awareness Day, we’re asking all partners to show their love for the expectant mother in their lives by taking part in our #pregnanttogether campaign,” says Louise Gray of NOFASD Australia.

“Babies need healthy and supportive fathers too. Dads-to-be can take an active part in a pregnancy by giving up or reducing alcohol and becoming pregnant together with their partners. And if you are thinking about becoming a father, take some time to think about the role of alcohol in your life and in what ways can you make healthier choices for your relationship?”

There is no known safe amount of alcohol which can be consumed during pregnancy and the National Health and Medical Research Council, Australia (NHMRC), the Australian Government Department of Health and other affiliated medical bodies all advise that no alcohol is the safest choice.

NOFASD Australia has some suggestions for those who want to be #pregnanttogether and make a difference:

1.Take a ‘pregnant pause’ – If your partner, friend, sister, co-worker or another woman you know is pregnant, you may want to consider taking a ‘pause’ from drinking – for a month or the entire pregnancy – as a way of showing support.

2.Make it easy to be alcohol-free – When socialising, take the emphasis away from drinking alcoholic beverages in order to support the mum-to-be to make good choices and offer non-alcoholic options if you are a host. Avoid pressuring anyone to drink and make sure that the mum-to-be feels part of the fun whether or not they are drinking alcohol.

3.Start with the man in the mirror – Support a ‘culture of moderation’ by taking a look at your own drinking and working to minimise any harmful effects that your own drinking might have on yourself or pregnant partner.

4.Be compassionate – For some, stopping drinking can be a struggle. Avoid being critical and assume that women are doing the best they can, and let them know that you’re willing to help when they’re ready to make a change. Judgment creates a climate of fear and shame where women can feel discouraged and avoid seeking help to address their problems with alcohol.

There are a number of ways to get behind this #PregnantTogether campaign and raise awareness of NOFASD. Please join our Thunderclap by pledging a social media post to join in the conversation and help spread the FASD message on 9 September. Sign up here: https://www.thunderclap.it/projects/60991-fasd-day-pregnanttogether

In Sydney, on 9 September you can visit the NOFASD Australia stand at Westfield Sydney Central in the Pitt St Mall for a Tea Saloon event or attend a number of local events including and Harvey Local Drug Action Group flash mob in Harvey, Western Australia. For more details, see: http://www.nofasdaustralia.com/community/international-fasd-awareness-day

For more information about NOFASD, visit www.pregnanttogether.org.au and http://www.nofasdaustralia.com

About NOFASD and FASD Awareness Day

NOFASD Australia has a strong commitment to FASD prevention at a primary, secondary and early intervention level. NOFASD Australia is working towards ensuring FASD is recognised as a disability in Australia, promoting social inclusion by advancing the rights and interests of people living with FASD, and providing information, referral and support to individuals and families at a grassroots level. In addition, NOFASD Australia also provides education and training workshops to parent and carer groups, government and non-government service providers and school communities throughout Australia. FASD Awareness Day began in 1999, led by the US based NOFAS, and now takes place around the world, providing opportunities for communities to raise awareness about FASD and share this prevention message across the world.

Media contacts


Louise Gray

Executive Officer

louise@nofasdaustralia.com

+61 417 272 685

0417 272 685

1 300 306 238

05-Sep-2017 – FASD Interventions – There is cause for optimism

Dr. Natasha Reid has recently graduated with a PhD in Clinical Psychology. Her thesis investigated how to improve outcomes for children with FASD. She continues to be involved in FASD research at Griffith University and the Centre for Children’s Health Research in Brisbane.

Dr%20Reid

I was asked to give a presentation recently on the topic of FASD Interventions: What Works? I believe in part; that the title of this presentation was chosen because it is still common for some health professionals to believe that if a person has FASD, there is very little that can actually be done for them. A few years ago, before I came back to university to undertake my PhD I was working in the foster care system and unfortunately that was exactly what I was told.

However, contrary to this misconception, there are fantastic interventions available that have the potential to improve many aspects of life for individuals with FASD. As part of my PhD research I wanted to know what effective interventions were currently available. So, I undertook a systematic review of all the available research at the time. I found 32 different interventions, across a very wide range of areas that I could include in this review (e.g., developmental outcomes in infants, self-regulation and attentional control, socials skills, parenting programs, education and advocacy and support for parents with FASD).

I cannot go into detail about all of these studies here (I have included the reference below for the full details). Several of these interventions are well known such as, the Families Moving Forward Program, The Maths Interactive Learning Experience (MILE) and The Good Buddies Program (i.e. social skills program). These are all excellent examples of evidence-based interventions that can improve different aspects of functioning for children with FASD. Further, the ALERT program, which is a commonly used intervention in Australia, in clinics and in schools has also been found to be helpful for children with FASD. Notably, one of the studies using the ALERT program (Soh et al., 2015) found changes in children’s brains after the intervention. Very exciting stuff! To my knowledge, this is the only study to date that has included pre-post brain scans.

In addition, there have been many more promising intervention studies that have been published more recently. For example, the Families on Track integrated prevention program, which is a combination of Families Moving Forward and the group based PATHS curriculum. Notably, the PATHS curriculum is also an intervention that is used in Australian schools. Further, the GoFAR Program, which is a computer game and behavioural program that focuses on improving self-regulation for children 5 – 10 years. Also, there has recently been a small trial of the Circle of Security with young children (2-5 years) with FASD, which found reductions in parent stress and child behaviour. Again, this is an intervention that is already widely available in Australia that focuses on improving caregiver and child relationships, which may be particularly important for some families.

Consequently, there are a broad range of interventions available. Currently, the majority of these interventions are for school-aged children, although there are more that also include preschool-age children. However, there are still few studies that have included adolescents and adults and this is an important area that needs attention.

Though, where we are currently falling down is in the dissemination of these interventions (i.e., getting them out there to all the people who need them). Although there have been numerous effective intervention studies conducted, we do not have access to all these wonderful interventions in Australia. So, we need to encourage our health and education professionals to work together to get people to come out to Australia to provide training to all of us!

However, there are also a number of interventions that have been mentioned that you may already have training in (e.g. the ALERT program, The Circle of Security), which have the potential to be very helpful to children and families. Therefore, we can be optimistic and hopeful that as health and education professionals we have something to offer families!

I believe that if we can instil some confidence in our professionals through understanding that there are many potential benefits of interventions, they will be more likely to assess for FASD.

References

Reid et al., (2015). Systematic review of fetal alcohol spectrum disorder interventions across the lifespan. Alcoholism: Clinical and Experimental Research.

Soh et al. (2015). Self-regulation therapy increases frontal gray matter in children with fetal alcohol spectrum disorder: evaluation by voxel-based morphometry. Frontiers in Human Neuroscience.

Petrenko, C., Pandolfino, M., & Robinson, L. (2017). Findings from the families on track intervention pilot trial for children with FASDs and their families. Alcoholism: Clinical and Experimental Research.

Dearman et al., (2017). A descriptive study of a community-based home visiting program with preschool children parentally exposed to alcohol. Journal of Population Therapeutics and Clinical Pharmacology.

24-Aug-2017 – FASD International Awareness

Holding a FASD Awareness event in September? Let us know what it is and you will be eligible to win one of these fantastic books!

  • Children of the grog by Lorian Hays
  • Parenting a child with an invisible disability by Julia Brown and Dr Mary Mather
  • Trying differently rather than harder by Diane Malbin

All 3 books are being raffled so you have a better chance of winning a prize. To register click here

08-Aug-2017- Safe in the community

Safe in the Community

You are invited to a meeting on keeping people with disability safe

The names of the people running the meeting are Jill Mason, Anna Posselt and Jane Rosengrove.

They will talk with you about:

  1. How to stop people taking your money or taking your things,
  2. How to stop people from hurting you or your feelings,
  3. What to do if people say or do mean things,
  4. What to do when people do not help you when they should,
  5. What to do if people do not listen to you.

Jane has a disability and she will talk about how she keeps herself safe.

Afternoon Tea provided

Catch Bus 24 from St Georges Terrace in Perth

Get off on Nicholson Road after Rupert St in Subiaco

To let us know that you want to come along, go to the website shown below or phone Mary on 9420 7230 on Mondays, Tuesdays or Fridays

https://www.eventbrite.com.au/o/developmental-disability-wa-2046684199?s=46101795

For more information contact:

Mary Butterworth

Developmental Disability WA

Phone 9420 7230 on Mondays, Tuesdays and Fridays

mary.butterworth@ddc.org.au

This meeting is being run by People with Disabilities WA,

Women’s Community Health Network WA and Developmental Disability WA.

01-Aug-2017 – Working with Adolescents and Adults with FASD

FASD – Fetal Alcohol Spectrum Disorders Working with Adolescents and Adults with FASD Gold Coast Workshop 27rd July 2017

To view click here

14-Nov-2013 – Working with Adolescents and Adults with FASD Gold Coast Workshop

What are your experiences working with adolescents and adults with FASD? What would you like to know about FASD and adolescents and adults?

Read more

26-Jul-2017 – Parent and carer survey

Improving screening for young children with fetal alcohol spectrum disorder (FASD).

We would like to thank all of the parents and carers who have responded to the call for research participants so far- the response has been fantastic.

We are currently seeking parents and carers of young children- between 3 and 8- with a diagnosed or suspected FASD to participate in a telephone interview about some of the common difficulties and challenges faced by your children.

If you would like to participate please contact Stewart McDougall using any of the contact details below.

You will be reimbursed for your time with a $20 Coles Myer gift-card.

Telephone or SMS (08) 8302 2983 or 0433 670 749
Email Stewart.mcdougall@unisa.edu.au
Surveymonkey link Provide contact details and we will contact you

https://www.surveymonkey.com/r/7QLSPH7

25-Jul-2017 – Special Invitation to health professionals

Special Invitation:

Sent on behalf of Professor Elizabeth Elliott

I would like to invite you (as an individual health professional) or your clinic to register for the FASD Hub Australia Service Directory – an online directory of FASD experienced and informed health professionals in Australia.

The FASD Hub Australia website will create a single site to help make finding information and services easier whether you are a health professional, teacher, justice professional, service provider, researcher or parent and carer. For more information about the website visit www.fasdhub.org.au

The Service Directory will be a critical part of the FASD Hub Australia website that will be launched in early September 2017. I encourage you to register by COB Friday 11 August – this will allow us time to enter the information onto the Hub ready for launch.

For the Service Directory you can register as either a clinic and/or as an individual health professional. Once you have completed the registration form for one category you will be asked if you also want to register for the other category. Click on ‘No’ if you don’t wish to register for the second category and the registration process will be complete. I encourage you to provide details of your FASD-related experience and training to help guide Australian parents and carers to the most appropriate services.

Registration should take less than 5 minutes. To register please click on the following link https://www.surveymonkey.com/r/FASDhub

For further information about this FASD Hub Australia Service Directory, please contact either peter.omalley@sydney.edu.au or heather.jones@telethonkids.org.au

Apologies if you receive this invitation from multiple sources as we have asked several networks and organisations to distribute to health professionals.

Kind regards

Elizabeth Elliott AM FAHMS MD MPhil MBBS FRACP FRCPCH FRCP

Chair of the National FASD Technical Network and Lead on the FASD Hub Australia project

Elizabeth.elliott@health.nsw.gov.au

12-Jul-2017 – Pregnant Pause, FARE’s innovative public health campaign

Pregnant Pause, FARE’s innovative public health campaign that encourages mums-to-be to go alcohol free with the support of their family and friends, officially launched its latest television commercial (TVC) on the big screen at a premiere screening at Palace Electric Cinema in Canberra on Monday

05-Jun-2017 – 2017 Western Australian of the year

NOFASD Australia are very happy and proud to congratulate Dr James Fitzpatrick, a NOFASD ambassador, on winning the profession award for the 2017 Western Australian of the year. More info

12-May-2017 – You are invited to take part in an online consultation on the NDIS Code of Conduct

You are invited to take part in an online consultation on the NDIS Code of Conduct and to promote the consultation among your membership.

The NDIS represents a fundamental change to how services for people with disability are funded and delivered across Australia. A new NDIS Quality and Safeguarding Framework (the Framework) has been developed to ensure that all NDIS participants have the same protections, regardless of where they live in Australia.

One part of the new Framework is an NDIS Code of Conduct. A Code of Conduct can clearly set out expectations on providers and workers delivering NDIS supports and services and enable action against providers and workers if they engage in unacceptable behaviours.

I welcome your ideas and feedback on the content of the NDIS Code of Conduct. A Discussion Paper is available at www.engage.dss.gov.au, including versions in Easy English and audio formats. You are encouraged to read the Discussion Paper, complete the quick survey on the website, or upload a submission if you have more detailed feedback to contribute to the discussion. Your input, along with others who contribute to the consultation, will be considered as we finalise the content of the Code of Conduct. The closing date for completing surveys and uploading submissions is 5pm (AEST), 21 June 2017.

21-Apr-2017 – Parent Carer Survey about FASD diagnosis

Improving screening for young children with fetal alcohol spectrum disorder.

Are you currently caring for a young child who has been diagnosed with a fetal alcohol spectrum disorder?

We are seeking parents and carers currently raising a young child who has been diagnosed with a FASD to take part in the first stage of a research project aiming to enhance the screening of young children suspected of having FASD.

We would like to invite you to participate in a telephone interview to discuss the challenges experienced by children with a FASD that you are caring for, or have cared for.

You will be reimbursed for your time with a $20 Cole Myer gift-card.

If you would like to participate, please contact Stewart McDougall, or leave a message with your contact details and we will contact you

Telephone or SMS (08) 8302 2983 or 0433 670 749
Email Stewart.mcdougall@unisa.edu.au
Surveymonkey link Provide contact details and we will contact you

https://www.surveymonkey.com/r/7QLSPH7

We understand the challenges associated with obtaining a diagnosis may mean that you strongly believe that a child has FASD but has not received a diagnosis yet. If this describes your situation, please contact the research to discuss your potential participation in the research project.

This project has been approved by the University of South Australia’s Human Research Ethics Committee. In accordance with ethics procedures, data will only be accessible by the researchers and confidential data will be securely stored by UniSA for 5-years prior to being destroyed.

If you have any ethical concerns about the project or questions about your rights as a participant, please contact Vicki Allen, the Executive Officer of the Ethics Committee, Tel: +61 8 8302 3118; Email: Vicki.allen@unisa.edu.au

13-Apr-2017 – Parents, carers and adults living with FASD we need you help!

Brief survey – parents/carers and adults living with FASD

We’re seeking your help with developing a new national website (the FASD Hub) and have 10 survey questions which will take less than 10 minutes to answer. The survey closes in two weeks – Thursday 27 April.

Your opinions, insights and experience will ensure we create a website that is useful to everyone. No identifying information is collected in this survey and it has ethics approval from the University of Western Australia (RA/4/1/9040).

Please use this link https://curtin.au1.qualtrics.com/jfe/form/SV_eDmQBcMy3onK1jD

Background: the FASD Hub

The FASD Hub project aims to create a single web portal to make finding FASD information and services easier – whether you are a health professional, parent/carer, or work in other professions working clients with FASD, research or policy. The project is funded under the Australian Government’s FASD Action Plan 2013-2016 which identified the need to create a single authoritative source for all Australian FASD information that is up-to-date and evidence-based.

The FASD Hub does not aim not to duplicate existing online information. It will support and build upon the excellent work done by existing Australian FASD resources. FASD HUB Project partners include NOFASD Australia, University of Sydney, Menzies School of Health Research, Australian and New Zealand FASD Clinical Network, FASD Research Australia Centre for Research Excellence.

For more information about the project please contact:

31-Mar-2017 – Train it Forward: a Masterclass for FASD

NOFASD Australia and the Drug Education Network would like to invite you to:

Train it Forward: a Masterclass for FASD

This event will support delegates to be the ‘go to’ person in their organisation for information regarding Fetal Alcohol Spectrum Disorder (FASD). After completing this masterclass, delegates will be able to deliver NOFASD Australia authorised training within their own workplaces and communities, to enable a better quality of life for those with lived experience of FASD. The training will enhance knowledge and understanding of FASD and enable delegates to easily share relevant knowledge with colleagues.

Delegates will each receive a range of relevant and useful FASD resources as handouts for duplication and all the relevant electronic links are provided. In addition, delegates will also be introduced to a range of resources, information, and connections from the Drug Education Network (DEN) that will enable them to keep families and communities safer in relation alcohol and other drugs.

Event: $95.00 (includes lunch and materials).

Date and Time

Thursday, 15 June 2017

10:00 am – 3:00 pm AEST

Location

“The Grange” Meeting & Function Centre

4A Commonwealth Lane

Campbell Town, TAS 7210

Further information and registration

Register here:

https://fasdmasterclass.eventbrite.com.au

Special Dietary Requirements:

If you have any special dietary requirements please email Robyn

prior to the 10th June with details – Robyn@nofasdaustralia.com

17-Mar-2017 – FASD conference

2017 National Fetal Alcohol Spectrum Disorder (FASD) Conference in Calgary, Alberta on October 24-27, 2017.Call for Abstracts will be open from March 1 to April 5, 2017.

Read more

06-Feb-2017 – 7th International Conference on Fetal Alcohol Spectrum Disorder

7th International Conference on Fetal Alcohol Spectrum Disorder is being held in Vancouver BC on the 1st to the 4th of March 2017…….

Click here

20-Jan-2017 – Abstract submissions for GAPC conference extended

The Global Alcohol Policy Conference will be held in Melbourne this year from the 4th – 6th of October. This is an international conference focused on alcohol policy and the evidence for action. FASD will be a stream in the conference and there is no doubt that the evidence now available on FASD requires policies around prevention, awareness raising, diagnosis and intervention. NOFASD is keen to support this opportunity raise awareness of FASD. The abstract deadline has been extended until….

GAPC2017-extension-01

2016

03-Dec-2016 – 12 Mocktails of Christmas

Count down to Christmas with the 12 mocktails of Christmas advent calendar

The silly season is now upon us and the diary is jam packed with function after function, family gatherings, parties and catch ups all featuring lots of food, drinks and alcohol. For those who are pregnant, planning a pregnancy or taking a break from alcohol, Christmas often means trying to fend off the constant offers of alcoholic drinks while making the most of your sparkling water.

NOFASD and Pregnant Pause (FARE – Foundation for Alcohol Research and Education) want to ‘rock the mock’ this Christmas and have compiled the best mouth-watering mocktails for their 12 Mocktails of Christmas advent calendar. When mocktails taste this good, who needs alcohol? Ice-cold, fruity and delicious, these handpicked cocktails sans the booze are easy to make and ideal for all occasions. Save the plastic cups for picnics, these liquorless libations need to be served up in proper glassware – going alcohol free doesn’t mean being demoted to the kiddies table.

12 Mocktails of Christmas will help you count down to the big day through an interactive advent calendar slowly revealing a new recipe during December. So, whether you’re pregnant, planning a pregnancy, on a health kick, the designated driver or prefer not to drink alcohol or want to be the hostess with the mostest, why not beat the heat this Christmas and with mix it up with these tasty mocktails.

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Fruity Father Christmas punch

250g strawberries, halved

60g raspberries

75g blueberries

1 ripe kiwifruit, peeled, finely chopped

2 cups cranberry juice

2 cups of raspberry juice

4 cups chilled lemonade

2 cups chilled pineapple juice

1/4 cup fresh mint leaves

Divide the strawberries, raspberries, blueberries and kiwifruit evenly among 2 ice-cube trays. Cover with cold water and place in the freezer for 4 hours or overnight until set.

Combine the fruit juice, lemonade and pineapple juice in a large serving jug. Add the ice cubes and mint, and stir to combine. Serve immediately.

http://www.taste.com.au/recipes/2852/santa+claus+punch
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Ginger beer and pineapple punch

850ml unsweetened pineapple juice

750ml good ginger beer

½ an ice cube tray of tea ice cubes

a handful of fresh mint sprigs

slices of your favourite fruit, like lime or orange

the pulp from one large passionfruit (optional)

Pour it all into a jug, stir and serve immediately. Make sure each glass gets some tea ice cubes

http://allrecipes.com.au/recipe/10265/ginger-beer-and-pineapple-punch.aspx

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Pink grapefruit ‘margaritas’

2 tablespoons coloured icing sugar

1 lime

6 teaspoons pomegranate syrup or grenadine

1 ½ cups pink-grapefruit juice

Place icing sugar in a shallow dish or plate. Slice six thin rounds from the middle of lime; set aside. Rub lime wedge around rims of six glasses; dip each rim in sugar to coat. Pour 1 teaspoon pomegranate syrup into bottom of each glass.

Place grapefruit juice and 2 cups ice cubes in a blender. Process on high speed until ice is crushed. Pour frozen mixture into martini glasses, and stir to combine with syrup. Garnish with reserved lime rounds or fresh seasonal berries, and serve immediately.

http://www.marthastewart.com/334284/pink-grapefruit-margaritas

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Bellini Cocktail

1/4 cup peach nectar, chilled

3/4 cup ginger ale, chilled

1/4 cup fresh fruit or berries of your choice

Pour peach nectar evenly between two champagne glasses. Top with ginger ale and fresh fruit berries. Serve immediately and enjoy.

Modified from recipe at http://www.tablespoon.com/recipes/peach-bellini-mocktails/00b37cf1-3fc5-423c-9a08-fab19d892a34

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Sparkling sangria

4 cups black grape juice

1 plum

1 peach

2 clementines or mandarins

6-8 strawberries

2 cups ginger ale

A bunch of mint

Quarter plum and peach, and remove pits. Place fruit in a large pitcher.

Remove peel from clementines, halve, and place in pitcher.

Remove greens from berries, halve, and place in pitcher.

Cover with grape juice. Stir well, and let sit in fridge for 1-2 hours (or more).

Mix with ginger ale and add mint just before serving.

Modified from recipe at http://jensfavoritecookies.com/2013/04/05/sangria-mocktail/

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Shirley temple

4 tbsp grenadine syrup

2 cups ginger ale

1 Maraschino cherry

Pop Rocks (optional)

Rim glass with pink Pop Rocks. Add grenadine syrup to ginger ale. Garnish with a maraschino cherry

Modified from recipe at http://www.parenting.com/gallery/mocktails-recipes?page=5

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Chocolate Mock-Tini

1/2 cup chocolate milk

1 cup mint choc chip ice cream

Ice

Drinking chocolate powder

1 candy cane (optional)

Wet rim of a martini glass and dip into drinking chocolate powder. Blend together chocolate milk, mint-chocolate chip ice cream and 4 ice cubes and add to martini glass. Garnish with candy cane.

Modified from recipe at http://www.parenting.com/gallery/mocktails-recipes?page=3

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Snuggles on the beach

1/3 cup cranberry juice

¼ cup grapefruit juice

40 mL peach nectar

2 teaspoons of grenadine

¼ cup of ginger ale

Throw everything in a highball glass with ice. Stir. Garnish with an orange round and some cherries. Drink up! Feel free to increase quantity to make enough for the entire party or tweak the ingredient amounts to your taste.

Modified from recipe at http://mixthatdrink.com/cuddles-on-the-beach/

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Apple fake-tini

1 cup sparkling apple juice (preferably dry)

ice for mixing

cinnamon sugar for rimming the glass

orange or cinnamon stick to garnish (optional)

For an extra kick add 2 tablespoons of Ginger-Cinnamon syrup:

Mix 1 cup sugar, 1 cup water, 2 cinnamon sticks, and some ginger to taste in a saucepan over medium heat. Heat until sugar is dissolved, let cool and strain to remove excess ginger and cinnamon.

For the Fake-tini

Prepare martini glass by wetting the rim with sparkling apple juice and then dipping in cinnamon-sugar.
Add ice to martini shaker. Pour in apple juice (and ginger syrup if applicable). Shake and pour into prepared glass. Garnish with apple slice or cinnamon stick.

Modified from recipe at http://www.rachelcooks.com/2012/09/14/ginger-cinnamon-apple-cider-fake-tini/

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Virgin Mary

1 litre tomato juice, chilled

2 tablespoons Worcestershire sauce

1 teaspoon Tabasco sauce

2 cups ice cubes

1 lemon, quartered

Salt and pepper

4 celery stalks and Tabasco sauce (optional), to serve

Combine tomato juice, worcestershire sauce and Tabasco in a jug. Divide ice between 4 glasses. Squeeze 1 lemon quarter into each glass. Place squeezed quarter in each in a high ball glass. Top with juice mixture. Season with salt and pepper. Serve with celery and extra Tabasco (if using)

Modified from recipe at http://www.taste.com.au/recipes/23360/virgin+mary

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Mockmosa

2 parts orange juice

3 parts dry sparkling white grape juice

Mint (optional)

Pour the orange juice into a flute glass and then pour the sparkling white grape juice. Optionally, you can garnish with a mint sprig.

Modified from recipe at http://mixthatdrink.com/mockmosa-non-alcoholic/

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Nojito

12 to 14 small mint leaves or 6-8 big ones

30 ml fresh lime juice

2 tablespoons brown sugar

120 ml of sparkling mineral water

Put the mint leaves, lime juice and brown sugar in a tall cocktail glass and muddle the leaves. Fill the glass with ice cubes and add the mineral water. Stir to mix up the sugar. Garnish with another mint sprig.

Modified from recipe at http://mixthatdrink.com/nojito-cocktail-non-alcoholic/

01-Dec-2016 – 12 Mocktails of Christmas

Count down to Christmas with the 12 mocktails of Christmas advent calendar

The silly season is now upon us and the diary is jam packed with function after function, family gatherings, parties and catch ups all featuring lots of food, drinks and alcohol. For those who are pregnant, planning a pregnancy or taking a break from alcohol, Christmas often means trying to fend off the constant offers of alcoholic drinks while making the most of your sparkling water.

NOFASD and Pregnant Pause (FARE – Foundation for Alcohol Research and Education) want to ‘rock the mock’ this Christmas and have compiled the best mouth-watering mocktails for their 12 Mocktails of Christmas advent calendar When mocktails taste this good, who needs alcohol? Ice-cold, fruity and delicious, these handpicked cocktails sans the booze are easy to make and ideal for all occasions. Save the plastic cups for picnics, these liquorless libations need to be served up in proper glassware – going alcohol free doesn’t mean being demoted to the kiddies table.

12 Mocktails of Christmas will help you count down to the big day through an interactive advent calendar slowly revealing a new recipe during December. So, whether you’re pregnant, planning a pregnancy, on a health kick, the designated driver or prefer not to drink alcohol or want to be the hostess with the mostest, why not beat the heat this Christmas and with mix it up with these tasty mocktails.

12%20Mocktails%20of%20Christmas_Mocktail%201

Nojito

12 to 14 small mint leaves or 6-8 big ones

30 ml fresh lime juice

2 tablespoons brown sugar

120 ml of sparkling mineral water

Put the mint leaves, lime juice and brown sugar in a tall cocktail glass and muddle the leaves. Fill the glass with ice cubes and add the mineral water. Stir to mix up the sugar. Garnish with another mint sprig.

Modified from recipe at http://mixthatdrink.com/nojito-cocktail-non-alcoholic/

07-Oct-2016 – Busting FASD Myths

Busting FASD Myths

Free Webinar

Thursday 20th of October 2016

This webinar will assist any practitioner, parent or carer that that may interact with someone who has lived experience of FASD. There are multiple myths associated with FASD, and this webinar will challenge those myths, discuss the evidence, and present the facts.

To register please fill out form in link below:

http://omnovia.redbackconferencing.com.au/landers/page/96a556

About your Presenter – Anne Heath

Anne Heath has a background in community services (alcohol and drug, youth work, disability, mental health, homelessness) and has directly worked with, or supported staff who have worked with children and adults living with FASD. Anne has a Master of Education, and currently works in the Faculty of Education at the University of Tasmania, teaching Human Development to undergraduate teaching students.

28-Oct-2016 – Busting the FASD Myths

If you missed our webinar on Busting the FASD Myth.
………………………………………………………………………………………..

click here

27-Sep-2016 – Launch of FASD handbook

Launch of the new FASD Handbook resources from DEN in Tasmania

Commentary by Connie May, MHST

connie

As a public relations volunteer for several One Generation Changes projects, one of my personal missions is to help prevent the population harms that stem from substance use, including smoking and alcohol, two of the largest threats to our community health and social well-being.

A One Generation Changes project is a community led project that aims to make a difference for disadvantaged children within THIS generation or the one immediately following; using a “pay it forward” type of volunteerism.

My interest in helping spread the word about FASD risks is three fold.

One: people close to me are dealing with the impacts of unintended alcohol exposure to children during pregnancy.

Two: I’m well aware of the strong drinking culture of our country as a population health researcher/writer and believe the incidence of FASD is far greater than most of us currently recognise or are willing to openly acknowledge, and that this means adequate supports are difficult to come by.

Three: If every person impacted by FASD has a social circle of influence of at least 100 people, and we can prevent FASD as much as possible and support those that are already impacted by the condition, then ultimately millions of people might be helped.

So when I was asked if I could take some photographs at the DEN’s launch in Tasmania’s Parliament (by Hon Michael Ferguson), I jumped at the chance.

What I wasn’t prepared for, however, was how emotionally moved I would be by the event.

Here’s why I was moved to tears filming the launch of The FASD Prevention Handbook on the 7th of September 2016.


Collaboration and Sharing

Firstly, I was moved by the beautiful sense of camaraderie and cooperation between the different groups that helped to bring this resource to fruition. The ambiance was so warm and inclusive that it highlighted to me, again, that a collaborative cross-sector approach is too often missing from other non-profit organisations and community support groups. BIG TICKS for warmth and inclusion to the DEN crew with Shirleyann Varney, and to the Hon Michael Ferguson, MP (Tasmanian Minister for Health, Information Technology and Innovation and Leader of Government Business in House of Assembly), and to the attendees and FASD movers and shakers including NOFASD educator Anne Heath, Dr Adrian Reynolds, Grant Herring and so many others I had the pleasure to talk with on the day.

 photo-test

Shirlyann Varney and Anne Heath

Acknowledgement & Women Centred Knowledge

It was also lovely to see that DEN made note of the people that were diligent in bringing the resource to fruition and acknowledge the support they had from NOFASD.

Awareness and Intent to Support Impacted Families

Alcohol intake, admittedly, is a popular past time and income source for many agencies. As part of our culture and economic system, it can be difficult for people to face that it has serious harms to our population. It takes even more guts to admit we need to take serious steps to acknowledge those harms and do something productive about preventing them and helping impacted families. But everyone who attended the launch clearly recognised the need, and were passionate about making a difference in sharing knowledge and resources to help.

The Tasmanian Minister of Health Clearly understands the Issues surrounding FASD and the need for more support

DEN

Often launches of new community resources are seen as an obligatory attendance function by most politicians. Not so for the launch of the FASD Handbook by the Hon Michael Ferguson, MP, Tasmania’s Minister of Health.

Ferguson spoke articulately and passionately about how moved he has been by the information he’s seen on FASD in the community, from the likes of DEN, FASD and media reports, which fortunately are increasing at exponential rates as our understanding – and community interest – grows. He also noted he was particularly moved by a Four Corners report Hidden Harm (By Deb Whitmont and Mary Fallon) which is available at this link: http://www.abc.net.au/4corners/stories/2015/11/02/4341366.htm.

All of which goes to show you that it takes a community to raise a child, and a community to become aware and caring about FASD to raise a child that isn’t impacted by prenatal exposure to alcohol, by helping EVERYONE understand the safest options about drinking during pregnancy.

Which is, as we all know: NONE FOR NINE.

Many thanks to the wonderful DEN team and to NOFASD’s new Director, Louise