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National Organisation for FASD Australia

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Welcome to the website of the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD) Australia.

FASD & NDIS

Or Browse Our Portal Below

NDIS & E-Learning

FOR NDIS PROVIDERS, AGENCIES AND SUPPORT SERVICES

FOR INDIVIDUALS WITH FASD

FOR PARENTS & CARERS

Navigating the National Disability Insurance Scheme (NDIS)

What is the NDIS? What happens now you have a diagnosis?

Welcome to NOFASD Australia’s NDIS Portal. This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.

The NDIS Portal is an information hub for parents, caregivers, adults with FASD and anyone providing services to support families and individuals.

The NDIS, is a government initiative that provides reasonable and necessary support to Australians with disability, their families, and caregivers. It is the funding body that enables individuals with a permanent and significant disability to access necessary supports and services. The goal of the NDIS is to shift support funding from being based on labels and diagnoses to being about a person’s individual needs in gaining independence and integrating into the community. We understand that navigating the NDIS system and processes can be tricky at times for people impacted by FASD, so NOFASD is here to support you.

The National Disability Insurance Scheme (NDIS). NDIS and the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD) Australia work in tandem to support individuals with Fetal Alcohol Spectrum Disorder (FASD) and their families.

NOFASD Australia is a non-government organisation that works to provide resources, support, and information to individuals, families, caregivers, agencies, support services and professionals dealing with FASD. This organization focuses on the prevention of alcohol-exposed pregnancies and supporting those who live with FASD.

Do you have these questions in mind?

  • How do I access support?
  • What support is available?
  • What type of support do I need?

NOFASD can help you with the following NDIS queries:

1) Diagnosis and Assessment:

NOFASD Australia can help families and individuals find FASD-informed health professionals who assess and diagnose FASD. To get support from the NDIS, there must be proof of a permanent, lifelong, significant disability.Health professionals will write reports after you have completed assessments with them. The NDIS will need to see these reports to understand how FASD impacts you or the person you care for and how receiving support from the NDIS could help you in your day-to-day life.

2) So now you have a FASD diagnosis! Applying to the NDIS:

To apply to the NDIS, you must first complete an Access Request Form. You can view this short webinar to find out more: Understanding the NDIS, Accessing the NDIS; Webinars  1. and 2.

If an access request is approved, you are then able to become a participant of the NDIS. The next stage is your NDIS planning meeting.

You can find out more information about applying to the NDIS in this factsheet provided by Kate Gray, Clinical Psychologist, previously from Berry Street Take Two FASD & Applying for the NDIS

3) Preparing for your Planning Meeting

You will be asked about your support needs and the goals you have for the future. You can read more about how to prepare for your planning meeting on the NDIS website.

Being prepared for the planning meeting is very important. It can be difficult for people during the planning meeting as you need to explain how have FASD affects you, and think about some of the things that you find the hardest and will struggle to do if you don’t have someone else supporting you. Looking at the worst case scenario can be difficult when you would rather focus on what you can do.

You can find examples of how to write your goals for your NDIS plan by looking at these on the NOFASD website.

You can watch these short webinars on the NOFASD website to find out more about NDIS Planning, Reviewing a plan, and the supports you can access. Webinars 3, 4 & 5.

4) Accessing FASD-informed supports:

Once you have had your planning meeting and have discussed your support needs and goals with your planner, now it’s time to get the support you need.

You can find out more about the types of help you can get from health professionals to support you with day-to-day tasks and goals by speaking to your Local Area Coordinator (LAC) you can find out more in the NDIS booklet using the NDIS plan. Not all LACs will understand the best way to help someone living with FASD. The factsheets (For Individuals with FASD – NOFASD Australia ) on the NOFASD website give helpful information which you can share with your LAC or service provider. Whilst many health professionals will be FASD-informed, not everyone will be. Ask your health profession or service provider if they know much about how FASD affects people differently. Showing them the factsheets (For Everyone – NOFASD Australia) on the NOFASD website will be helpful. The factsheets provide information and recommendations for types of supports that may be effective for different areas of need. You could ask them to complete the online course  via the NOFASD website and the ‘new FASD Informed e-learning platform’ to help them understand more about FASD if they would like to learn more.

5) Advocacy:

NOFASD Australia can help advocate for the needs of individuals with FASD and their families, ensuring they receive appropriate support from the NDIS. There are letters (For Parents & Carers – NOFASD Australia) on the NOFASD NDIS page which explain more about FASD and these are helpful for people who you come into contact with. If you can’t find the information you need on the NOFASD NDIS page, you can call the NOFASD helpline on 1800 860 613 to see if they have more answers.

 

6) Education and Training:

NOFASD Australia can also offer information, resources and training to NDIS service providers to help them become more FASD-informed. You can call our helpline or send us an email to find out more, or ask your service provider to do so. We also have the free online Australian Foundations in FASD course (https://youtu.be/uSpHGwZ2Ovk) on our website. This is a good start for people to complete to help them gain basic knowledge. Encourage your service provider to do this today! We also have a webinar you can ask your service provider to watch ‘Working with individuals with FASD Webinar 6’  (https://youtu.be/lir9tXu99jg) to find out more;

If the information you are searching for is not available in our NDIS Portal, please phone us on 1800 860 613 (free call) or send us a message.

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