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National Organisation for FASD Australia

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Welcome to the website of the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD) Australia.

For Parents & Caregivers

Toolkit for Parents & Caregivers about Fetal Alcohol Spectrum Disorder (FASD)

This Toolkit provides information about Fetal Alcohol Spectrum Disorder (FASD) that will enable you to better understand your child and advocate for them – to ensure their physical, emotional, and educational needs are met so they have the best life possible.

Factsheets for Parents and Caregivers

The NDIS Factsheets for Parents and Carers are a series of factsheets to assist parents and carers to be more informed of the NDIS process and helpful language and information to be aware of when sharing information about a child with FASD. These factsheets are focused on interventions for children, however adults with FASD may find this information helpful;

Ineligible for NDIS funding? please don’t despair!

Should your child for some reason be ineligible for NDIS funding please don’t despair! There are a range of supports available to carers that are not part of the NDIS, including respite support, counselling, education, training, peer support and advocacy. For information about what support and services are available in your area, call the National Care Advice Line  on 1800 422 737 Monday to Friday 8am – 6pm

10 steps to excellent NDIS therapy reports.

NDIS Sample Plan – Adolescent Male

The NDIS Sample Plan 1 is an example of a completed plan for an adolescent male with an NDIS diagnosis. This plan outlines some of the supports and goals which may be relevant for an adolescent requiring NDIS funding and support. This document is a sample ONLY and is specifically written for the case study provided. Funding amounts included are not based on fact.

Helpful Factsheets

Speech Pathologist & FASD

Occupational Therapists (OTs) and FASD

Social Workers and FASD

Clinical Psychologists and FASD

NOFASD General Letter of Support

resources for parents and carers

NDIS Glossary of Terms

The NDIS Glossary of Terms documents helps to explain some of the words used in the NDIS documents we have included on our website. Some of the terms will be related to the NDIS terminology and some will explain important language related to FASD.

Example Letter Template

The Example Letter Template is available for parents and carers to download and edit as a helpful letter to share with LAC/ECEI Coordinators, NDIS Planners and service providers. The letter aims to support carers to share, in general terms how FASD can impact an individual.

General Letter of Support

The General Letter of Support is available as a sample only document on the website. For parents or carers who have a FASD diagnosis for their child or for adults with a diagnosis, NOFASD can amend this letter to include your personal details to support your NDIS application. Please contact admin@nofasd.org.au for more information.

Tips for special occasions

‘It’s a Party! 

The NOFASD Birthday Party Book has been written by Robyn Smith the NOFASD Helpline Services Manager. Robyn has been supporting parents, carers and individuals with FASD on the NOFASD Helpline since 2016. With permission and support from a number of wonderful parents and with publishing assistance from Early Childhood Australia, Robyn has compiled this excellent guide for parents and carers for organising a successful birthday party.

Download your free electronic copy.

TRAVEL TIPS

Holidays are exciting and most of us look forward to them. But for individuals with FASD and their families, being out of routine can be a disaster!

Whether you are travelling by plane, car, boat or school camp we have some tips to try and minimise disruption and potential meltdowns.

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