Australian Governement - Department of Health

For Parents & Carers

NOFASD FASD and the NDIS – Factsheets for Parents and Carers

The NDIS Factsheets for Parents and Carers are a series of factsheets to assist parents and carers to be more informed of the NDIS process and helpful language and information to be aware of when sharing information about a child with FASD. These factsheets are focused on interventions for children, however adults with FASD may find this information helpful;

10 steps to excellent NDIS therapy reports.

This best practice guide on producing excellent therapy reports to inform the development of NDIS plans or plan reviews was developed by VALID advocates with expertise in providing advocacy support to people with intellectual disabilities. It is primarily designed as an information source for therapists as they prepare reports for NDIS participants. It can also be used as an information source for NDIS participants, families, Local Area Coordinators, and Support Coordinators when they are commissioning therapy reports, or to determine whether a report is of a high standard. 10 Steps to Excellent NDIS Therapy Reports

NDIS Sample Plan – Adolescent Male

The NDIS Sample Plan 1 is an example of a completed plan for an adolescent male with an NDIS diagnosis. This plan outlines some of the supports and goals which may be relevant for an adolescent requiring NDIS funding and support. This document is a sample ONLY and is specifically written for the case study provided. Funding amounts included are not based on fact.

Reimagine – one of the primary categories under the NDIS where adults with FASD should be eligible to qualify for services is Psychosocial Disability. Although this website has been designed for people with a mental health condition it has excellent information about psychosocial disability and how to apply for services under the NDIS.

Should your child for some reason be ineligible for NDIS funding please don’t despair! There are a range of supports available to carers that are not part of the NDIS, including respite support, counselling, education, training, peer support and advocacy. For information about what support and services are available in your area, call the National Care Advice Line  on 1800 422 737 Monday to Friday 8am – 6pm

NOFASD General Letter of Support

resources for parents and carers

NDIS Glossary of Terms

The NDIS Glossary of Terms documents helps to explain some of the words used in the NDIS documents we have included on our website. Some of the terms will be related to the NDIS terminology and some will explain important language related to FASD.

 Example Letter Template

The Example Letter Template is available for parents and carers to download and edit as a helpful letter to share with LAC/ECEI Coordinators, NDIS Planners and service providers. The letter aims to support carers to share, in general terms how FASD can impact an individual.

General Letter of Support

The General Letter of Support is available as a sample only document on the website. For parents or carers who have a FASD diagnosis for their child or for adults with a diagnosis, NOFASD can amend this letter to include your personal details to support your NDIS application. Please contact admin@nofasd.org.au for more information.

COMING SOON

  • A series of factsheets for adults with FASD
  • Factsheets for NDIS providers, agencies and staff
  • Medical and Allied Health Factsheets to outline how clinical services can support individuals with FASD

‘It’s a Party! the NOFASD Birthday Party Book

The NOFASD Birthday Party Book has been written by Robyn Smith the NOFASD Helpline Manager. Robyn has been supporting parents, carers and individuals with FASD on the NOFASD Helpline for more than 4 years. With permission and support from a number of wonderful parents and with publishing assistance from Early Childhood Australia, Robyn has compiled this excellent guide for parents and carers for organising a successful birthday party. 

Download your free electronic copy.

TRAVEL TIPS

Holidays are exciting and most of us look forward to them. But for individuals with FASD being out of their routine and comfort zone holidays can be a disaster!

We all know that routine and structure is what individuals with FASD usually thrive on – going on a holiday is usually lack of routine and structure, which can create anxiety leading to the dreaded meltdown and behaviour issues making it an unpleasant time for everyone.

Whether you are travelling by plane, car, boat or school camp we have some tips try and minimise meltdowns.

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