The National Disability Insurance Scheme (NDIS)
The goal of the NDIS is to shift support funding from being based on labels and diagnoses to being about a person’s individual needs in gaining independence and integrating into the community.
Whether you are an adult with FASD or suspected FASD or a parent/carer supporting a child with FASD, NOFASD Australia is here to support you so please contact us if you need any help with completing forms for the NDIS. We may also be able to help if you have been denied NDIS funding.
Although a diagnosis of FASD may not be necessary to qualify for support, supporting documents will be required. This means you will need to have assessments from allied health professionals, for example, psychologists, neuropsychologists, speech therapists or occupational therapists that demonstrate your child’s needs in relation to the activities listed below.
Both children and adults with FASD should be eligible for support through the NDIS as they most likely will have significant and permanent disability that reduces their functional capacity (ability to perform age appropriate tasks and activities), or psychosocial capacity (ability to relate to others in personal relationships, work or school) in undertaking one or more of the following activities:
- social interaction
- self-care or
The NDIS supports your child, as well as you and your family and eligibility for services will be determined by the National Disability Insurance Agency (NDIA).
In order for a support to be deemed reasonable and necessary by the NDIA it must:
- Be related to the participant’s disability
- Not include day-to-day living costs unrelated to disability support needs
- Represent value for money
- Be likely to be effective and beneficial to the participant; and
- Take into account informal supports given to participants by families, carers, networks, and the community.
These are the support categories the NDIS will fund:
- Assistance with daily life at home, in the community, education and at work
- Transport to access daily activities
- Certain independent living supports
- Daily living skills training/therapy to assist independence
- Social skills and behaviour support
- Improved living arrangements
- Improved health and well-being through dieticians, personal trainers, or exercise physiologists
- Psychology services for anger management for those with cognitive impairment or autism
- Learning improvement support
- Finding and keeping a job
- Increased social and community participation
- Improved life choices
- Assistive technology
- Vehicle modifications; and
- Home modifications.
The NDIS will not cover the following:
- Supports unrelated to their disability.
- Rent, groceries, utilities etc.
- Something funded elsewhere – for example school support or mental health services covered by MHCP.
- Pediatricians’ consultations and medication management; or
- Psychology services for anxiety.
Video – What is and isn’t covered by the NDIS
Respite for carers has changed – a video from Carers Victoria regarding respite and the NDIS
ndis-carers-handbook is a clear guide offering practical advice and support on how to achieve the best possible outcomes for both the person being cared for and for carers.
The Raising Children Network provides information that may be helpful National Disability Insurance Scheme: FAQs
Reimagine – one of the primary categories under the NDIS where adults with FASD should be eligible to qualify for services is Psychosocial Disability. Although this website has been designed for people with a mental health condition it has excellent information about psychosocial disability and how to apply for services under the NDIS.
Evidence You Can Provide to Assist With Identifying Your Needs for Behaviour Supports in your NDIS Plan – If your son/daughter/family member needs supports to develop self- regulation of behaviour or to decrease behaviours which others find challenging, there are a number of ways you can back up your claim by providing evidence.
Should your child for some reason be ineligible for NDIS funding please don’t despair! There are a range of supports available to carers that are not part of the NDIS, including respite support, counselling, education, training, peer support and advocacy. For information about what support and services are available in your area, call the National Carer Advisory Line.
NDIS booklets and fact sheets – these include booklets on understanding and using an NDIS plan and fact sheets on a range of topics. The booklets are intended for use throughout a person’s NDIS journey and can be used to record key information, write questions and collect thoughts.
NDIS myths debunked – With so much information about the National Disability Insurance Scheme (NDIS) out there, not everything you hear is going to be correct. This web page addresses some common myths.
Mapping My World https://www.endeavour.com.au/ndis/resources – NDIS Planning Booklet and other helpful resources from The Endeavour Foundation
Preparing for your NDIS planning meeting
What Can I do if I am unhappy with a decision made about my application for NDIS funding?
If you or the person you care for is unhappy with an experience you have had within the NDIS, it is important to make yourself heard.
Ask for a Review: NDIS Review Guide
Seek the help and support of an independent advocate near you: Disability Advocacy Finder
Contact the NOFASD national helpline 1800 860 613 if you would like any further information or support.
Multilingual Disability Hub
If English is your second language you may wish to access the Multilingual Disability Hub which provides information on disability and the National Disability Insurance Scheme (NDIS) in a range of languages. This hub also provides a hotline in multiple languages – view the website for contact details.