The National Disability Insurance Scheme (NDIS)
The goal of the NDIS is to shift support funding from being based on labels and diagnoses to being about a person’s individual needs in gaining independence and integrating into the community.
Whether you are an adult with FASD or suspected FASD or a parent/carer supporting a child with FASD, NOFASD Australia is here to support you so please contact us if you need any help with completing forms for the NDIS. We may also be able to help if you have been denied NDIS funding.
Although a diagnosis of FASD may not be necessary to qualify for support, supporting documents will be required. This means you will need to have assessments from allied health professionals, for example, psychologists, neuropsychologists, speech therapists or occupational therapists that demonstrate your child’s needs in relation to the activities listed below.
Both children and adults with FASD should be eligible for support through the NDIS as they most likely will have significant and permanent disability that reduces their functional capacity (ability to perform age appropriate tasks and activities), or psychosocial capacity (ability to relate to others in personal relationships, work or school) in undertaking one or more of the following activities:
- social interaction
- self-care or
The NDIS supports your child, as well as you and your family and eligibility for services will be determined by the National Disability Insurance Agency (NDIA).
In order for a support to be deemed reasonable and necessary by the NDIA it must:
- Be related to the participant’s disability
- Not include day-to-day living costs unrelated to disability support needs
- Represent value for money
- Be likely to be effective and beneficial to the participant; and
- Take into account informal supports given to participants by families, carers, networks, and the community.
These are the support categories the NDIS will fund:
- Assistance with daily life at home, in the community, education and at work
- Transport to access daily activities
- Certain independent living supports
- Daily living skills training/therapy to assist independence
- Social skills and behaviour support
- Improved living arrangements
- Improved health and well-being through dieticians, personal trainers, or exercise physiologists
- Psychology services for anger management for those with cognitive impairment or autism
- Learning improvement support
- Finding and keeping a job
- Increased social and community participation
- Improved life choices
- Assistive technology
- Vehicle modifications; and
The NDIS will not cover the following:
- Supports unrelated to their disability.
- Rent, groceries, utilities etc.
- Something funded elsewhere – for example school support or mental health services covered by MHCP.
- Pediatricians’ consultations and medication management; or
- Psychology services for anxiety.
Video – What is and isn’t covered by the NDIS
Association for Children with a Disability: Getting ready for the NDIS – NDIS Planning Workbook. The aim of this workbook is to help you prepare for your child’s planning meeting with the NDIS
The Raising Children Network provides information that may be helpful National Disability Insurance Scheme: FAQs
Discover guide is a practical, comprehensive and up-to-date guide to the NDIS, prepared by La Trobe University in conjunction with Endeavour Foundation, aims to help people understand the various components of the NDIS and how to access them. It also includes additional legal information on whole-of-life planning for people with a disability.
Reimagine – one of the primary categories under the NDIS where adults with FASD should be eligible to qualify for services is Psychosocial Disability. Although this website has been designed for people with a mental health condition it has excellent information about psychosocial disability and how to apply for services under the NDIS.
Should your child for some reason be ineligible for NDIS funding please don’t despair! There are a range of supports available to carers that are not part of the NDIS, including respite support, counselling, education, training, peer support and advocacy. For information about what support and services are available in your area, call the National Carer Advisory Line.