Support for Caregivers & Families
For confidential information or support please call our National helpline
Australian FASD Support groups
The staff and family support team at NOFASD Australia understand the feelings of isolation sometimes experienced by families living with FASD. While we are unable to provide direct assistance such as treatment or legal services we do provide confidential telephone and email support to individuals living with FASD and their parents, carers, family members and service providers.
If you are seeking referral information to diagnostic and related supports throughout the country or would like the opportunity to share your experience or concerns with our staff or family support person please call us on 1800 860 613 (free call) or send us a message.
This GOWI Evaluation Report outlines the development of the digital online Getting on with it (GOWI) pilot between NOFASD and Dr Anita Gibbs over the course of 2019, and includes a combined evaluation report of an internal brief survey as well as an external telephone-based evaluation undertaken in early 2020 by an independent, external contractor
Adelaide FASD Support Group meetings are facilitated by NOFASD founder Sue Miers at a location reasonably central to the City where car parking is not an issue. The purpose of these informal gatherings is to provide attendees with an opportunity to find understanding and support through group discussions and to access helpful resources. Please use our online enquiries form to register your interest and find out the date and time of the next meeting.
Support for Parents of Kids with Neurobehavioural Challenges (International). A FB group for parents/caregivers interested in learning more about the neurobehavioural model for parenting children with challenging behaviour, facilitated by Eileen Devine, experienced therapist, support coach and parent of a child who has FASD.
Shifting the paradigm: towards a neuro-behavioral approach to FASD (international Group)
Flying with Broken Wings (International Group) – a closed FB support group for adults who have FASD and those who work with or care for them. Created by RJ Formanek, a person living with FASD.
MyTime groups are also active in every state and provide support for mothers, fathers, grandparents and anyone caring for a child with a disability or chronic medical condition. It’s a place for you to unwind and talk about your experiences. It’s a world away from appointments and therapy. It’s support for you.
Commonwealth Respite and Carelink Centres (CRCCs) provide free and confidential information on local carer support, disability and community. The national network of CRCCs provides a link to carer support services and assists carers with options to take a break through short-term and emergency respite. Where appropriate, a CRCC can help with putting in place regular respite for a carer to reduce the need for unplanned and emergency respite.
Carer Gateway is a national online and phone service that provides practical information and resources to support carers. The interactive service finder helps carers connect to local support services.
Care for Carers
It is extremely important to look after yourself, but we understand that this can at times be a very difficult thing to do! You are not alone. Caring for a young person with FASD can be exhausting and isolating. You are always welcome to call or email NOFASD’s helpline on 1800 860 613 to talk about your experience, discuss strategies, or to be connected with other families with similar experiences.
If your child is eligible for NDIS funding you may be able to access respite services to take some time to care for yourself. There is no item listed under NDIS specifically as ‘respite’, which has caused confusion, but respite is available and is described as Supports for Sustaining Informal Supports. Read more about accessing the NDIS.
Eileen Devine recently published a valuable article explaining caregiver burnout and providing suggestions. Read it here.
To read about another parent’s experiences raising a child with FASD follow this link to read Mama Maremma’s blog.
Caring for Carers Australia provide support across the country. Visit their website.
Kath, who is also raising young people living with FASD, talks about caring for carers’ mental health in the video below.
International Information & Support Networks
Proof Alliance (Minnesota)